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I am Diana, Alex's mother

by diana allen last modified Sep 05, 2008 08:36 PM

I am suppose to have Ehlers-Danlos IV syndrome. I do belive i might even though my tests did not show i had the condition. My Dr's think i have as they say i look like i have it

I have an high arched pallet with crowded teeth. I had to have all my top teeth removed as i had periodontis (ageing of the teeth) which all my family have suffered. I have asthma which most of my family suffer aswell. My left ventrical is a bit sluggish and i have an EGC scan every year. I am quite double jointed, but my son is a lot bendier. I also suffered non cancerous tumor in my neck which started to crush my wind pipe when i was an infant aged 2 years. I am very slim, my weight is 7 stone. I used to be 8 stone when i was 18 years old, but over the years it as slowly gone down. I just hope i do not lose any more weight. I also have thin muscles, i was accused of been anorexic by my Dr years ago. Even though i can eat for England. I do not get that anymore now. I just wrote this down as i am not sure if there is a connection. I do konw that my great grandmother was 6'8" and my grandad was 6'5" and his 2 brothers were taller than him but they died in there 30's. My grandmother was 4'10" and was born without eye brows and eye lashes, she died from something similar to motorneurons desease. Nobody really knows as that was in the 70's and not much was known then.
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